“What’s M.E? I must have that too! I’m always tired.”
Stop. Just stop. This is one of the worst things you can say to someone with M.E. It’s up there with “you just need some decent sleep” or “you’re just lazy” or even “why don’t you try exercising more to build your stamina?”
I get it. A lot of people are tired. But M.E tired? Friends, that’s a whole other level. It’s a tired that takes over your life. Your ability to live, to work, to go to school, to even get up to pee! It’s exhausting. It hurts. If your tired isn’t debilitating your life, than you’re doing pretty okay. Maybe try a new routine, diet, whatever. For M.E, for me, it’s not so simple.
Imagine being depressed and explaining the black hole of emptiness to someone whose never felt it. Imagine explaining the pain of child birth to anyone whose never given birth to children. Imagine trying to explain your own pain of any medical condition to someone healthy. You get the picture.
I want to become more of an advocate for M.E, as for years, I rejected it and hid from it. So I’m gonna blog into at the world, at you, at no one to maybe help one person or myself.
I’ll share my symptoms, my struggles and my successes (the fancy 3 S’s).
Bye for now, friends
A Bit of M.E 